Thursday, April 14, 2011

Why medical research matters - a personal story

We have two sons Junior Grendel Number One - aged 9, and Junior Grendel Number Two, aged 7. They are great boys, full of life, loud, funny, active, farty boys.

Junior Grendel Number One has autism which gives us a few extra things to deal with but he is an amazing child. His brother can insist on attention like no one I have ever seen.

They are amazing and we love them.

On a dark day in 2004 we nearly lost them both to Pneumococcal septicaemia.

The youngest had been ill for a few days and my partner took him to the after hours clinic at Joondalup from where he was admitted directly to the pediatric ward at Joondalup hospital. I left our older son with neighbours and took some clothes and personal items in to the hospital. On my return my older son looked unwell and walking back to our front door he collapsed and started having convulsions. His blue lips triggered a phone call to the ambulance and I could feel he was hot so I stripped him off as far as I could and tried to cool him with a wet cloth.

My partner recieved a frantic call from me telling her, as she sat by the bed of our 10-month old baby, that our two-year old was arriving at the emergency entrance in an ambulance.

The staff wanted a sample of urine from our eldest but he was so unwell that after an hour's debate they decided on a massive dose of antibiotics. Within two hours he had responded and was moved to the wards. Our youngest was a difficult case and it took a week for him to recover to the point where we could take him home.

Their lives were saved by the medical knowledge developed through decades of medical research and the applied research that followed. Doctors only know how to treat these diseases effectively because research has made the discoveries that point the way.

Streptococcus pneumoniae, the bacteria that cause Pneumococcal septicaemia, pneumonia and meningitis are found commonly in the respiritory tract. There is a vaccine available to prevent illness from occuring from the most common strains. The program to commence the vaccination of children was rolled out nationally in 2005. This program will save the lives of children like my boys. It will save parent the trauma we underwent and it will prevent costly hospital intervention and emergency events.

The medical research that leads to vaccines like these is funded through the National Health and Medical Research Council and carried out by organisations and researchers at organisations like Perth's very own Telethon Institute for Child Health Research.

I'm angry by any decision to reduce research funding because as a parent this place me, my partner and our children at risk. As a citizen I know that cuts in research place fellow citizens at risk. As a human I know that the reduction of funding will cost lives, not just here in Australia, but in the developing world where our research has even more significant value, since many countries cannot afford the research infrastructure that we have established.

We can't afford to reduce funding - not from a health outcomes perspective and not from an economic perspective.

Protect Research.

Make your voice heard - Go here - Get Involved and email those who may be about to place your life at risk.

6 comments:

  1. Hi Grendel,

    Thank you so much for blogging about this issue. As a medical researcher I am passionate about wanting to make discoveries that lead to real cures (or preventions as you recount above).

    Did you know there is going to be a rally in Forrest Place today from midday? We are urging members of the community to come along and support medical research.

    Funding is the only thing holding us back: there is no reason why world class medical research can't thrive here in WA - we have the people (just look at Barry Marshall), we will soon have the buildings, now all we need is the support.

    Come along today and rally for research!

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  2. Thanks for your story!

    I'm a medical researcher who does this job (which takes many years of sleep deprivation and tertiary education, is relatively high stress, relatively low paid, and relatively thankless) because I hope that something I do will make a difference in the world and that someone out there will appreciate it. The proposed cuts are quite demotivating, whether they happen or not, as it shows how little the government values the job we do, but I have been especially saddened by the comments following articles in various newspapers supporting the cuts, and dismissing all the efforts to rally in support of research, as it has shown how little respect this work holds within the wider community.

    I'm proud of the scientific community for making their voice heard and I'm proud to be a researcher when I read stories like this one.

    Your support for what we do is truly appreciated.

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  3. Hi Grendel,

    great story, did you get to find a lab coat for the rally today?

    I was in the middle waving my sign. very moving.

    Michelle (DrStip)

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  4. No, but I did wear my while geeky t-shirt. I once had a lab coat but that was decades ago now (scary thoughts). It was great to see so many there. I saw other parents as well.

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